• measure Liver enzymes

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3
     
    0
    5
    10
    15
    20
    25
    30
    years
    Liver enzymes, for instance Albumin, Jodide, Aspartaat Aminotransferase (ASAT), and Alanine Transaminase (ALAT), measured with traditional enzymatic tests, such as Enzyme-Linked Immunosorbent Assays (ELISA).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Cantril ladder

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS2 YE_FITNSS YS_TRIP age 3 YS_TRIP age 5 YS_TRIP age 7
     
    0
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    20
    25
    30
    years
    The Cantril ladder is an assessment of the subjective quality of life on a scale from 0 to 10.
    Created October 17, 2024 • Updated October 20, 2024

  • measure DNA methylation (array)

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YC_ACTION - BB3
     
    0
    5
    10
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    20
    25
    30
    years
    Assessment of DNA methylation as obtained through DNA methylation arrays.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Zygosity (questionnaire)

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQ14 YS_DHBQ16 YC_DSC YC_ADHMRI YS_TRIP age 1 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    30
    years
    The Zygosity questionnaire asks parents of twin pairs about the resemblance between the twins to determine whether the twin pair is mono- or dizygotic. This questionnaire consists of 10 questions: 6 items about physical similarities between the twin and 4 items about confusion in identifying the twins by parents and others.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Zygosity (DNA)

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQ14 YS_DHBQ16 YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF1 YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YE_COG18 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    20
    25
    30
    years
    Zygosity typing based on micro-satellite markers, single nucleotide polymorphisms (SNP), or variable number (short) tandem repeats (VNTRs).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Blood sugar markers

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3
     
    0
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    10
    15
    20
    25
    30
    years
    Blood sugar markers, for instance Glucose, Insulin, and C-peptide, measured with traditional enzymatic tests, such as Enzyme-Linked Immunosorbent Assays (ELISA).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Pregnancies & miscarriages

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YE_COG18 YS_TRIP age 1 YS_TRIP age 1-2
     
    0
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    25
    30
    years
    Pregnancies and Miscarriages contains questions about getting pregnant, including the use of hormone preparations or assisted reproductive technologies, and miscarriages.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Wellbeing

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YC_ACTION BB2 YC_ACTION - BB3 YS_TRIP age 3 YS_TRIP age 5 YS_TRIP age 7
     
    0
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    25
    30
    years
    Wellbeing consists of one question asking "How would you describe the wellbeing of the child?". The question is raeted on a 5-point Likert scale.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Dipstick

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3
     
    0
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    25
    30
    years
    Urinary dipstick (Siemens, Marburg, Germany) was applied to the first thaw of the urine samples either by dipping in the residual urine volume after aliquoting or by dropping urine on the dipstick to screen for signs of infections in the urine and to measure leukocytes, nitrite, proteins, glucose, and blood presence in the urine.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Inflammation markers

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3
     
    0
    5
    10
    15
    20
    25
    30
    years
    Inflammation markers, for instance C-reactive protein (CRP), Lymphocytes, Neopterin, Immunoglobulin E (IgE), Immunoglobulin G (IgG), and tissue Transglutaminase Immunoglobulin A (tTg-IgA), measured with traditional enzymatic tests, such as Enzyme-Linked Immunosorbent Assays (ELISA).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Surgery and anesthesia

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YC_BS1 YC_BS2 YE_ATTEF2 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    25
    30
    years
    Surgery and anesthesia assesses any experienced surgery, including the insertion of grommets and the removal of tonsils, and general anesthesia.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
    0
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    30
    years
    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Oxidative stress markers

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3
     
    0
    5
    10
    15
    20
    25
    30
    years
    Oxidative stress markers, including Oxidized DNA/RNA, Total Antioxidant Capacity, and Thiobarbituric acid reactive substances (malondialdehyde), were measured with traditional enzymatic tests, such as Enzyme-Linked Immunosorbent Assays (ELISA).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Viral infections

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3
     
    0
    5
    10
    15
    20
    25
    30
    years
    Viral and parasitic infection loads, for instance Influenza A, Influenza B, Herpes Simplex Virus 1 (HSV1), Herpes Simplex Virus 2 (HSV2), Toxoplasma Gondii, Cytomegalovirus (CMV), Epstein-Barr Virus (EBV), and Procalcitonin, measured with traditional enzymatic tests, such as Enzyme-Linked Immunosorbent Assays (ELISA).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Urine sample

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YE_COG18
     
    0
    5
    10
    15
    20
    25
    30
    years
    First-morning, spot, or 24 hour urine sample.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Anthropometry

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    30
    years
    Anthropometric measurements include height, weight, body mass index (BMI), and body circumferences.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Child Behavior Checklist (CBCL) 6-18

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_7 YS_10 YS_12 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_ATTEF2 YC_ADHMRI YS_TRIP age 4 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    30
    years
    The Child Behavior Check List (CBCL 6-18) is part of the Achenbach System of Empirically Based Assessment (ASEBA) taxonomy and is a validated instrument to assess psychiatric symptoms in both clinical and research settings. The ASEBA parent report version for youths 6 to 18 years of age potentially includes the syndrome scales Anxious/Depressed,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Birth

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 1-2
     
    0
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    20
    25
    30
    years
    Birth assesses information on pregnancy duration, placenta and chorionicity, mode of delivery, complications around the delivery, and incubator time.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Demographics

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3 YS_REF YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF1 YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YS_DT YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    30
    years
    Demographic information includes age and year of birth, biological sex and gender, country and place of birth, current zipcode, nationality, religion, educational attainment, spoken laguages, and information on multiple births.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Family Composition

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2
     
    0
    5
    10
    15
    20
    25
    30
    years
    Family composition was assessed, including multiples in the (extended) family, twins in the extended family, number of siblings and number of children.
    Created October 17, 2024 • Updated October 20, 2024
You can also access this registry using the API (see API Docs).