• measure Sleep characteristics and sleep problems

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 2 years
     
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    Sleep characteristics and sleep problems assesses infant's sleep and sleep regulation, including sleep patterns, habits and sleeping problems.
    Created June 5, 2024 • Updated September 19, 2024

  • measure Healthcare Utilization

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 3 years 4 years 5-6 years
     
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    Healthcare Utilization assesses the frequency of visits to a doctor (e.g. a general practitioner, peadiatrician, ENT), the reasons for such visits, concrete information about the visit (e.g., name of the hospital and doctor), the frequency of hospitalization, and the use of alternative medicine. It also assesses the growth (length, weight, head...
    Created June 5, 2024 • Updated September 19, 2024

  • measure Medical history - Child

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 4 years 5-6 years 9-10 years 13-14 years 17-18 years
     
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    Medical history of the child assesses the general health and medical history of the child. It includes items regarding, distress, respiratory problems (e.g., coughing, sneezing, tightness of chest), pain and perception of pain, abdominal problems (e.g., stomach aches, bowel movements, constipation), teeth problems (e.g., tooth ache, difficulty eating,...
    Created June 5, 2024 • Updated September 19, 2024

  • measure Epilepsy symptoms

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 5-6 years
     
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    Epilepsy symptoms assesses the presence of unexpected incidents and attacks in the medical history of the child. Items include epileptic seizures, seizure/febrile convulsion, a breath-holding spell, or lost consciousness.
    Created June 5, 2024 • Updated September 19, 2024

  • measure Neuromotor development

    Study:Generation R
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Generation R  6 weeks 3 months 6 months 1 year
     
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    Neuromotor development was assessed using items from the Touwen’s Neurodevelopmental Examination. Children's motor behavior was observed in supine, prone, sitting, standing, and walking positions.
    Created June 5, 2024 • Updated September 19, 2024

  • measure Child Development Inventory (CDI) - Motor development

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  6 months 1 year 1.5 years 2 years 4 years
     
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    The Child Development Inventory (CDI) was used to assess fine and gross motor development. The fine motor development scale measures eye-hand coordination - from picking up objects to scribbling and drawing. The gross motor development scale measures walking, running, climbing, jumping, riding, balance, and coordination. Each scale consists of 30 yes/no...
    Created June 5, 2024 • Updated September 19, 2024

  • measure Pain Coping Inventory (PCI)

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 years 3 years
     
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    The Pain Coping Inventory (PCI) assesses the maternal response to pain in herself, using 9 questions that were answered on a 4-point Likert scale (1 = seldom or never, 2 = sometimes, 3 = often, 4 = almost, or always), such as ‘I do something that I find enjoyable’.
    Created June 5, 2024 • Updated September 19, 2024

  • measure Excessive crying

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year
     
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    Excessive crying assesses whether participants feel like their baby cries a lot (yes/no), whether the child cried for more than 3 hours a day during the last week (yes/no), on how many days this occurred, and how many hours a day the baby cried. Excessive crying can be identified as crying for 3 hours per day on 3 days in the preceding week using the...
    Created June 5, 2024 • Updated September 19, 2024

  • measure Medical history - Fever

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  6 months 3 years 5-6 years
     
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    The Medical history - Fever questionnaire includes items about the fever history of children, including whether the child had a fever last year, associated symptoms, and doctor visits when the child had the symptoms.
    Created June 5, 2024 • Updated September 19, 2024

  • measure Toilet training

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 years 3 years
     
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    years
    Toilet training contains items that assess a child's nappy wearing habits and potty/toilet training.
    Created June 5, 2024 • Updated September 19, 2024

  • measure Air pollution

    Study:Generation R
    Mode of collection: Observation
    Available measurements:
    Generation R  Early pregnancy Mid pregnancy Late pregnancy Birth 6 weeks 2 months 3 months 4 months 6 months 1 year 1.5 years 2 years 2.5 years 3 years 4 years 5-6 years 7 years 8 years 9-10 years 11 years 12 years 13-14 years 17-18 years
     
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    For all participants, exposure to air pollutants at each geocoded address was assessed using continuous monitoring data and Geographic Information Systems (GIS)-based modelling techniques, considering the spatial and temporal variation in air pollution.
    Created June 5, 2024 • Updated September 19, 2024

  • measure Pain List

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 years 3 years 5-6 years
     
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    The Perquin’s Pain List is used to measure child's chronic pain. The Perquin’s Pain List focuses on the last 3 months, and comprises categorical yes/no-items regarding the experience and the characteristics of pain, such as the severity, duration, when, where, how often, and cause (rated on different Likert scales).
    Created June 5, 2024 • Updated September 19, 2024

  • measure Child Development Inventory (CDI) - Receptive and expressive language

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  1 year 1.5 years
     
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    The Child Development Inventory (CDI) was used to assess receptive and expressive language using age-appropriate items from the expressive language scale and the language comprehension scale. The scales ask caregivers to indicate on yes/no-items what sounds or words the child produces or understands.
    Created June 5, 2024 • Updated September 19, 2024

  • measure Health States Classification System for Preschool Children

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  3 years
     
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    The Health States Classification System for Preschool Children assesses a child's general capabilities, including sight, hearing, speaking, walking and moving around, hands, personal care, emotions, learning and remembering, thinking and solving problems, pain and discomfort, general health and behavior.
    Created June 5, 2024 • Updated September 19, 2024

  • measure Medication use

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6

    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
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    Medication use assesses whether participants use medication and contraceptive pills, including their name, dosage and duration of use.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Impairment Rating Scale (IRS)

    Study:TRAILS
    Mode of collection: Interview
    Available measurements:
    The Next Generation  NEXT - T3 NEXT - T4 NEXT - T5
     
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    years
    The Impairment Rating Scale (IRS) is a validated assessment of impairment that includes items on relationships with peers and adults, and academic progress.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Medical history

    Study:TRAILS
    Mode of collection: Interview
    Available measurements:
    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
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    years
    Medical history assesses health services utilization and medication use, focusing specifically on pregnancy.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Sleep and Settle Questionnaire (SSQ)

    Study:TRAILS
    Mode of collection: Interview
    Available measurements:
    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
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    years
    The Sleep and Settle Questionnaire (SSQ) is a validated assessment of infants' sleep and settling behavior and parent’s level of concern with such behaviors. It includes sleep patterns, time to settle to sleep, duration of crying, baby temperament, parental confidence, parental attributions to solve unsettlement, and parental distress.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Infant growth

    Study:TRAILS
    Mode of collection: Other    Anthropometrics/Body measures
    Available measurements:
    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4
     
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    Infant growth was measured as the child's length, weight, and head circumference as stated in the child's growth booklet.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Pregnancy Problems

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP age 1-2
     
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    years
    Problems during the pregnancy were assessed, such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS).
    Created June 5, 2024 • Updated June 20, 2024
You can also access this registry using the API (see API Docs).