• measure Pregnancy Problems

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP age 1-2
     
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    30
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    Problems during the pregnancy were assessed, such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication Use

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 5
     
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    30
    years
    Medication use assesses, among others, dosage, duration, and ATC code of any medications used, if available.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health problems and treatments

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    years
    Health problems and treatments contains questions about health problems, diseases and disorders, including handicaps, treatments (also for mental health problems) and hospitalization.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Surgery and anesthesia

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YC_BS1 YC_BS2 YE_ATTEF2 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    30
    years
    Surgery and anesthesia assesses any experienced surgery, including the insertion of grommets and the removal of tonsils, and general anesthesia.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
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    30
    years
    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Sleep characteristics and sleep problems

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 2 years
     
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    years
    Sleep characteristics and sleep problems assesses infant's sleep and sleep regulation, including sleep patterns, habits and sleeping problems.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medical history - Child

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 4 years 5-6 years 9-10 years 13-14 years 17-18 years
     
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    years
    Medical history of the child assesses the general health and medical history of the child. It includes items regarding, distress, respiratory problems (e.g., coughing, sneezing, tightness of chest), pain and perception of pain, abdominal problems (e.g., stomach aches, bowel movements, constipation), teeth problems (e.g., tooth ache, difficulty eating,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Epilepsy symptoms

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 5-6 years
     
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    years
    Epilepsy symptoms assesses the presence of unexpected incidents and attacks in the medical history of the child. Items include epileptic seizures, seizure/febrile convulsion, a breath-holding spell, or lost consciousness.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Neuromotor development

    Study:Generation R
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Generation R  6 weeks 3 months 6 months 1 year
     
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    years
    Neuromotor development was assessed using items from the Touwen’s Neurodevelopmental Examination. Children's motor behavior was observed in supine, prone, sitting, standing, and walking positions.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Child Development Inventory (CDI) - Motor development

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  6 months 1 year 1.5 years 2 years 4 years
     
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    years
    The Child Development Inventory (CDI) was used to assess fine and gross motor development. The fine motor development scale measures eye-hand coordination - from picking up objects to scribbling and drawing. The gross motor development scale measures walking, running, climbing, jumping, riding, balance, and coordination. Each scale consists of 30 yes/no...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Accidents

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  6 months 1.5 years 5-6 years
     
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    30
    years
    Accidents assesses home and traffic accidents that a child has experienced.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Pain Coping Inventory (PCI)

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 years 3 years
     
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    years
    The Pain Coping Inventory (PCI) assesses the maternal response to pain in herself, using 9 questions that were answered on a 4-point Likert scale (1 = seldom or never, 2 = sometimes, 3 = often, 4 = almost, or always), such as ‘I do something that I find enjoyable’.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Excessive crying

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year
     
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    years
    Excessive crying assesses whether participants feel like their baby cries a lot (yes/no), whether the child cried for more than 3 hours a day during the last week (yes/no), on how many days this occurred, and how many hours a day the baby cried. Excessive crying can be identified as crying for 3 hours per day on 3 days in the preceding week using the...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Toilet training

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 years 3 years
     
    0
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    30
    years
    Toilet training contains items that assess a child's nappy wearing habits and potty/toilet training.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Air pollution

    Study:Generation R
    Mode of collection: Observation
    Available measurements:
    Generation R  Early pregnancy Mid pregnancy Late pregnancy Birth 6 weeks 2 months 3 months 4 months 6 months 1 year 1.5 years 2 years 2.5 years 3 years 4 years 5-6 years 7 years 8 years 9-10 years 11 years 12 years 13-14 years 17-18 years
     
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    years
    For all participants, exposure to air pollutants at each geocoded address was assessed using continuous monitoring data and Geographic Information Systems (GIS)-based modelling techniques, considering the spatial and temporal variation in air pollution.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Pain List

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 years 3 years 5-6 years
     
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    30
    years
    The Perquin’s Pain List is used to measure child's chronic pain. The Perquin’s Pain List focuses on the last 3 months, and comprises categorical yes/no-items regarding the experience and the characteristics of pain, such as the severity, duration, when, where, how often, and cause (rated on different Likert scales).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Child Development Inventory (CDI) - Receptive and expressive language

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  1 year 1.5 years
     
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    30
    years
    The Child Development Inventory (CDI) was used to assess receptive and expressive language using age-appropriate items from the expressive language scale and the language comprehension scale. The scales ask caregivers to indicate on yes/no-items what sounds or words the child produces or understands.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Motor Development

    Study:RADAR
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Third Generation  G3 - T1 G3 - T2
     
    0
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    30
    years
    The Motor Development - Mijlpalen was developed as a parent-report scale that measures the developmental stages of children with various items. For example: "At how many months was your child able to roll over from back to stomach?".
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication use

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6

    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
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    years
    Medication use assesses whether participants use medication and contraceptive pills, including their name, dosage and duration of use.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Impairment Rating Scale (IRS)

    Study:TRAILS
    Mode of collection: Interview
    Available measurements:
    The Next Generation  NEXT - T3 NEXT - T4 NEXT - T5
     
    0
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    25
    30
    years
    The Impairment Rating Scale (IRS) is a validated assessment of impairment that includes items on relationships with peers and adults, and academic progress.
    Created October 17, 2024 • Updated October 20, 2024
You can also access this registry using the API (see API Docs).