• measure Pregnancy Problems

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP age 1-2
     
    0
    5
    10
    15
    20
    25
    30
    years
    Problems during the pregnancy were assessed, such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication Use

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 5
     
    0
    5
    10
    15
    20
    25
    30
    years
    Medication use assesses, among others, dosage, duration, and ATC code of any medications used, if available.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health problems and treatments

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
    5
    10
    15
    20
    25
    30
    years
    Health problems and treatments contains questions about health problems, diseases and disorders, including handicaps, treatments (also for mental health problems) and hospitalization.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
    0
    5
    10
    15
    20
    25
    30
    years
    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure EuroQol- 5 Dimension (EQ-5D)

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Early pregnancy 2 months 17-18 years
     
    0
    5
    10
    15
    20
    25
    30
    years
    The EuroQol-5 Dimension (EQ-5D) is an instrument which evaluates the generic quality of life. The EQ-5D consists 2 parts: the EQ-5D descriptive system and the visual analogue scale (VAS). The descriptive system includes five one question for each of the five dimensions that include mobility, self-care, usual activities, pain/discomfort, and...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Sleep characteristics and sleep problems

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 2 years
     
    0
    5
    10
    15
    20
    25
    30
    years
    Sleep characteristics and sleep problems assesses infant's sleep and sleep regulation, including sleep patterns, habits and sleeping problems.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Healthcare Utilization

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 3 years 4 years 5-6 years
     
    0
    5
    10
    15
    20
    25
    30
    years
    Healthcare Utilization assesses the frequency of visits to a doctor (e.g. a general practitioner, peadiatrician, ENT), the reasons for such visits, concrete information about the visit (e.g., name of the hospital and doctor), the frequency of hospitalization, and the use of alternative medicine. It also assesses the growth (length, weight, head...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medical history - Child

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 4 years 5-6 years 9-10 years 13-14 years 17-18 years
     
    0
    5
    10
    15
    20
    25
    30
    years
    Medical history of the child assesses the general health and medical history of the child. It includes items regarding, distress, respiratory problems (e.g., coughing, sneezing, tightness of chest), pain and perception of pain, abdominal problems (e.g., stomach aches, bowel movements, constipation), teeth problems (e.g., tooth ache, difficulty eating,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Epilepsy symptoms

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 5-6 years
     
    0
    5
    10
    15
    20
    25
    30
    years
    Epilepsy symptoms assesses the presence of unexpected incidents and attacks in the medical history of the child. Items include epileptic seizures, seizure/febrile convulsion, a breath-holding spell, or lost consciousness.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Familial medical history

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Early pregnancy Mid pregnancy
     
    0
    5
    10
    15
    20
    25
    30
    years
    The familial medical history questionnaire includes items about illnesses occurring in the family, including the parents of the mother and father, siblings, and other children.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Neuromotor development

    Study:Generation R
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Generation R  6 weeks 3 months 6 months 1 year
     
    0
    5
    10
    15
    20
    25
    30
    years
    Neuromotor development was assessed using items from the Touwen’s Neurodevelopmental Examination. Children's motor behavior was observed in supine, prone, sitting, standing, and walking positions.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Short Form 12 Health Survey (SF-12)

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Early pregnancy Late pregnancy 2 months 6 months 17-18 years
     
    0
    5
    10
    15
    20
    25
    30
    years
    The 12-Item Short-Form Health Survey (SF-12) assesses mothers’ physical and mental health-related quality of life. Items are rated on a 3-point Likert scale, or rated as a yes/no-item.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Gestational age

    Study:Generation R
    Mode of collection: MeasurementsAndTests    Echo
    Available measurements:
    Generation R  Early pregnancy Mid pregnancy Late pregnancy
     
    0
    5
    10
    15
    20
    25
    30
    years
    Gestational age is an estimation of the duration of pregnancy, either from the first day of the last menstrual period, or through ultrasound measurements, aiding in tracking fetal development.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medical history - Health conditions and disease

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Early pregnancy Mid pregnancy 9-10 years 17-18 years
     
    0
    5
    10
    15
    20
    25
    30
    years
    Medical history - Health conditions and disease includes a list of general health problems, common diseases, infectious diseases and complaints.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Pregnancy history - This pregnancy

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Early pregnancy Late pregnancy 2 months
     
    0
    5
    10
    15
    20
    25
    30
    years
    Pregnancy history - This pregnancy assesses the course of a current pregnancy (at enrollement) and subsequent child delivery. It includes items on the last period, height, and weight, whether pregnancy was planned, contraceptive use, infertility treatment, whether blood type matches with biological father, other pregnancies with same biological fathers,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Pregnancy history - Previous pregnancy

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Early pregnancy
     
    0
    5
    10
    15
    20
    25
    30
    years
    Pregnancy history - Previous pregnancy assesses characteristics of previous pregnancies before a pregnancy at enrollement. It includes items on birth weight, gestational age at birth, type of delivery (e.g., Caesarean), breastfeeding, congenital abnormality, epilepsy, testicle undescended, abnormal urethra, outcome (miscarriage, stillborn, abortion) and...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Excessive crying

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year
     
    0
    5
    10
    15
    20
    25
    30
    years
    Excessive crying assesses whether participants feel like their baby cries a lot (yes/no), whether the child cried for more than 3 hours a day during the last week (yes/no), on how many days this occurred, and how many hours a day the baby cried. Excessive crying can be identified as crying for 3 hours per day on 3 days in the preceding week using the...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication and vitamin use

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Early pregnancy Mid pregnancy Late pregnancy
     
    0
    5
    10
    15
    20
    25
    30
    years
    Medication and vitamin use includes items about folic acid and vitamin use for pregnancy, and medication use of parents.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Pregnancy complications and outcomes

    Study:Generation R
    Mode of collection: Other
    Available measurements:
    Generation R  Birth
     
    0
    5
    10
    15
    20
    25
    30
    years
    Pregnancy outcomes comprises of registration data of pregnancy complications, pregnancy outcomes and birth outcomes, such as live birth, induced abortion, fetal or perinatal loss, pregnancy induced hypertension, preeclampsia, gestational diabetes, birthweight, child sex, and gestational age.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Asthma and allergies

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Early pregnancy Mid pregnancy 9-10 years 13-14 years
     
    0
    5
    10
    15
    20
    25
    30
    years
    Asthma and allergies assesses the presence of health symptoms related to asthma and allergies, including chronic bronchitis, asthma, allergies to housedust, and food and drink allergies. Items about risk factors for asthma (e.g., damp, stains, smoking, pets at home) and allergic reactions are also included. Asthma was assessed using items from the ISAAC.
    Created October 17, 2024 • Updated October 20, 2024
You can also access this registry using the API (see API Docs).