• measure Pregnancy Problems

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP age 1-2
     
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    5
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    30
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    Problems during the pregnancy were assessed, such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS).
    Created October 17, 2024 • Updated October 20, 2024

  • measure General Health

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YE_FITNSS YE_ATTEF2
     
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    30
    years
    General health addresses the question: "How would you describe your health in general?"
    Created October 17, 2024 • Updated October 20, 2024

  • measure Vaccinations

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_7 YS_10 YC_ADHMRI
     
    0
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    years
    Vaccinations consists of questions about general vaccinations, such as vaccination against mumps, measles and rubella.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Headache and Migraine

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2
     
    0
    5
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    30
    years
    Headache and Migraine assesses the presence, frequency, intensity, symptomology, and duration of severe headache/migraine.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication Use

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 5
     
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    30
    years
    Medication use assesses, among others, dosage, duration, and ATC code of any medications used, if available.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health problems and treatments

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    years
    Health problems and treatments contains questions about health problems, diseases and disorders, including handicaps, treatments (also for mental health problems) and hospitalization.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Milestones and motor development

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_5 YS_TRIP age 2
     
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    years
    Milestones and motor development assesses the age of developmental milestones (rolling over, sitting upright, crawling, standing, walking, and first words) and the ability of children to perform several fine and gross motor tasks, such as throwing an catching a ball, writing their own name, reading simple words, tieing shoelaces, zipping up their coat,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure General Health Questionnaire

    Study:Netherlands Twin Register
    Mode of collection: Interview
    Available measurements:
    Young Netherlands Twin Register  YC_ADHMRI
     
    0
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    30
    years
    The General Health Questionnaire assesses the general medical history of the twins, as well as the presence (at present or in the past) of 110 specific medical conditions, derived from 19 distinct categories such as skin, respiratory, neurological, and infectious diseases.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Snellen Chart

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YC_ADHMRI
     
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    years
    A Snellen chart is an eye chart that can be used to measure visual acuity. The Snellen chart is printed with eleven lines of block letters. The first line consists of one very large letter, which may be one of several letters, for example E, H, or N. Subsequent rows have increasing numbers of letters that decrease in size. A person taking the test covers...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Surgery and anesthesia

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YC_BS1 YC_BS2 YE_ATTEF2 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    30
    years
    Surgery and anesthesia assesses any experienced surgery, including the insertion of grommets and the removal of tonsils, and general anesthesia.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
    0
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    30
    years
    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Subjective exercise ability

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQ14 YS_DHBQ16 YC_DSC YE_FITNSS follow-up
     
    0
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    30
    years
    Subjective exercise ability was assessed in an online survey. Participants were asked to rate how good they were at sports and how they compared themselves to their peers on sport ability, stamina, and muscle strenght.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Language and stuttering

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2
     
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    years
    Language development and stuttering contains questions about the child's speech development and the parent's and child's stuttering. Questions include, for example, "Have you ever stuttered?", "Did the stuttering bother you?", "Has your child ever stuttered?", "Does the child slowly repeat a sound from a sentence?", and "Does the child prolong a sound...
    Created October 17, 2024 • Updated October 20, 2024
You can also access this registry using the API (see API Docs).