• measure Pregnancy Problems

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP age 1-2
     
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    5
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    30
    years
    Problems during the pregnancy were assessed, such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS).
    Created October 17, 2024 • Updated October 20, 2024

  • measure General Health

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YE_FITNSS YE_ATTEF2
     
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    10
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    30
    years
    General health addresses the question: "How would you describe your health in general?"
    Created October 17, 2024 • Updated October 20, 2024

  • measure Vaccinations

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_7 YS_10 YC_ADHMRI
     
    0
    5
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    30
    years
    Vaccinations consists of questions about general vaccinations, such as vaccination against mumps, measles and rubella.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Headache and Migraine

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2
     
    0
    5
    10
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    25
    30
    years
    Headache and Migraine assesses the presence, frequency, intensity, symptomology, and duration of severe headache/migraine.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication Use

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 5
     
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    30
    years
    Medication use assesses, among others, dosage, duration, and ATC code of any medications used, if available.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health problems and treatments

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    30
    years
    Health problems and treatments contains questions about health problems, diseases and disorders, including handicaps, treatments (also for mental health problems) and hospitalization.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Milestones and motor development

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_5 YS_TRIP age 2
     
    0
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    years
    Milestones and motor development assesses the age of developmental milestones (rolling over, sitting upright, crawling, standing, walking, and first words) and the ability of children to perform several fine and gross motor tasks, such as throwing an catching a ball, writing their own name, reading simple words, tieing shoelaces, zipping up their coat,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure General Health Questionnaire

    Study:Netherlands Twin Register
    Mode of collection: Interview
    Available measurements:
    Young Netherlands Twin Register  YC_ADHMRI
     
    0
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    30
    years
    The General Health Questionnaire assesses the general medical history of the twins, as well as the presence (at present or in the past) of 110 specific medical conditions, derived from 19 distinct categories such as skin, respiratory, neurological, and infectious diseases.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Snellen Chart

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YC_ADHMRI
     
    0
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    25
    30
    years
    A Snellen chart is an eye chart that can be used to measure visual acuity. The Snellen chart is printed with eleven lines of block letters. The first line consists of one very large letter, which may be one of several letters, for example E, H, or N. Subsequent rows have increasing numbers of letters that decrease in size. A person taking the test covers...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Surgery and anesthesia

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YC_BS1 YC_BS2 YE_ATTEF2 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    30
    years
    Surgery and anesthesia assesses any experienced surgery, including the insertion of grommets and the removal of tonsils, and general anesthesia.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
    0
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    10
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    25
    30
    years
    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Subjective exercise ability

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQ14 YS_DHBQ16 YC_DSC YE_FITNSS follow-up
     
    0
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    30
    years
    Subjective exercise ability was assessed in an online survey. Participants were asked to rate how good they were at sports and how they compared themselves to their peers on sport ability, stamina, and muscle strenght.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Language and stuttering

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2
     
    0
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    30
    years
    Language development and stuttering contains questions about the child's speech development and the parent's and child's stuttering. Questions include, for example, "Have you ever stuttered?", "Did the stuttering bother you?", "Has your child ever stuttered?", "Does the child slowly repeat a sound from a sentence?", and "Does the child prolong a sound...
    Created October 17, 2024 • Updated October 20, 2024

  • measure General health during Covid-19 pandemic

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Covid questionnaires
     
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    30
    years
    General health, pregnancy and chronic diseases were asessed during the Covid-19 pandemic.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Physical characteristics mother and child

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  5-6 years
     
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    30
    years
    Physical characteristics assesses the hair, eye and skin color of mother and child.
    Created October 17, 2024 • Updated October 20, 2024

  • measure EuroQol- 5 Dimension (EQ-5D)

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Early pregnancy 2 months 17-18 years
     
    0
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    30
    years
    The EuroQol-5 Dimension (EQ-5D) is an instrument which evaluates the generic quality of life. The EQ-5D consists 2 parts: the EQ-5D descriptive system and the visual analogue scale (VAS). The descriptive system includes five one question for each of the five dimensions that include mobility, self-care, usual activities, pain/discomfort, and...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Sleep characteristics and sleep problems

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 2 years
     
    0
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    30
    years
    Sleep characteristics and sleep problems assesses infant's sleep and sleep regulation, including sleep patterns, habits and sleeping problems.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Lungs - Allergy test

    Study:Generation R
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Generation R  9-10 years
     
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    30
    years
    Sensitization for birch, cat or dog, or five grass mixture was measured with skin prick tests. Allergy outcomes were categorized into the groups “no inhalant allergic sensitization, no physician-diagnosed inhalant allergy,” “inhalant allergic sensitization but no physician-diagnosed inhalant allergy,” “no inhalant allergic sensitization but...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Sleep dairy

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  12 years
     
    0
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    30
    years
    A sleep dairy about sleep onset and waking was filled out in the morning for nine days by children.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Muscle function and bone strength (Mechanography)

    Study:Generation R
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Generation R  17-18 years
     
    0
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    30
    years
    Muscle function and bone strength were assessed using mechanography. This includes a mechanographic record of jumping movements on a specially designed springboard. Relevant functional parameters such as strength and spot force are measured to determine coordination, muscle function and muscle-bone relationship.
    Created October 17, 2024 • Updated October 20, 2024
You can also access this registry using the API (see API Docs).