• measure Pregnancy Problems

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP age 1-2
     
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    5
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    30
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    Problems during the pregnancy were assessed, such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication Use

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 5
     
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    30
    years
    Medication use assesses, among others, dosage, duration, and ATC code of any medications used, if available.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health problems and treatments

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    years
    Health problems and treatments contains questions about health problems, diseases and disorders, including handicaps, treatments (also for mental health problems) and hospitalization.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Surgery and anesthesia

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YC_BS1 YC_BS2 YE_ATTEF2 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    30
    years
    Surgery and anesthesia assesses any experienced surgery, including the insertion of grommets and the removal of tonsils, and general anesthesia.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
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    5
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    30
    years
    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Physical characteristics mother and child

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  5-6 years
     
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    30
    years
    Physical characteristics assesses the hair, eye and skin color of mother and child.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Healthcare Utilization

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 3 years 4 years 5-6 years
     
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    30
    years
    Healthcare Utilization assesses the frequency of visits to a doctor (e.g. a general practitioner, peadiatrician, ENT), the reasons for such visits, concrete information about the visit (e.g., name of the hospital and doctor), the frequency of hospitalization, and the use of alternative medicine. It also assesses the growth (length, weight, head...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medical history - Child

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 4 years 5-6 years 9-10 years 13-14 years 17-18 years
     
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    30
    years
    Medical history of the child assesses the general health and medical history of the child. It includes items regarding, distress, respiratory problems (e.g., coughing, sneezing, tightness of chest), pain and perception of pain, abdominal problems (e.g., stomach aches, bowel movements, constipation), teeth problems (e.g., tooth ache, difficulty eating,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Epilepsy symptoms

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 5-6 years
     
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    30
    years
    Epilepsy symptoms assesses the presence of unexpected incidents and attacks in the medical history of the child. Items include epileptic seizures, seizure/febrile convulsion, a breath-holding spell, or lost consciousness.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Lifetime pregnancy history

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  4 years 5-6 years
     
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    30
    years
    Lifetime pregnancy history includes questions about mothers' pregnancies (including possible miscarriages or abortions) during the entire lifetime, assessing the frequency of pregnancies, the course of the pregnancy, pregnancy complications and birth outcomes.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Accidents

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  6 months 1.5 years 5-6 years
     
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    30
    years
    Accidents assesses home and traffic accidents that a child has experienced.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medical history - Fever

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  6 months 3 years 5-6 years
     
    0
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    years
    The Medical history - Fever questionnaire includes items about the fever history of children, including whether the child had a fever last year, associated symptoms, and doctor visits when the child had the symptoms.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Pain List

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 years 3 years 5-6 years
     
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    30
    years
    The Perquin’s Pain List is used to measure child's chronic pain. The Perquin’s Pain List focuses on the last 3 months, and comprises categorical yes/no-items regarding the experience and the characteristics of pain, such as the severity, duration, when, where, how often, and cause (rated on different Likert scales).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication use

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6

    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
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    30
    years
    Medication use assesses whether participants use medication and contraceptive pills, including their name, dosage and duration of use.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Children's Sleep Habits Questionnaire (CSHQ) - Abbreviated/Short version

    Study:YOUth
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Baby and Child  6 years
     
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    30
    years
    The Children's Sleep Habit Questionnaire - Short Form (CSHQ-SF) assessess the largest categories of behaviorally-based sleep disorders and medically-based sleep disorders. The questionnaire consists of 8 subscales: not going to bed, falling asleep late, not enough sleep (sleep duration), fear of sleeping, staying awake at night, parasomnia (including...
    Created October 17, 2024 • Updated October 20, 2024

  • measure CoRonavIruS health Impact Survey (CRISIS)

    Study:YOUth
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Baby and Child  20 weeks 30 weeks 0 months 5 months 10 months 3 years 6 years

    Child and Adolescent  9 years 12 years
     
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    30
    years
    The CoRonavIruS health Impact Survey (CRISIS) assesses mental, behavioral, and physical health effects of the Covid-19 pandemic, as well as a range of pandemic-related and pre-existing risk and protective factors. The baseline version of the CRISIS assesses the following domains: background information about the household, physical and mental health prior...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Lifestyle

    Study:YOUth
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Baby and Child  20 weeks 30 weeks 5 months 10 months 3 years 6 years

    Child and Adolescent  9 years 12 years
     
    0
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    30
    years
    Lifestyle was assessed concerning vitamins, medication, exposure during pregnancy, alcohol, smoking, substance (ab)use, physical activity, and sleep (Pittsburgh Sleep Quality Index).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Child health

    Study:YOUth
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Baby and Child  5 months 10 months 3 years 6 years

    Child and Adolescent  9 years 12 years
     
    0
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    25
    30
    years
    Child health was assessed using a questionnaire about the child's general health, physical complaints, diseases, allergies, surgeries, medication and vaccinations.
    Created October 17, 2024 • Updated October 20, 2024
You can also access this registry using the API (see API Docs).