• measure Pregnancy Problems

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP age 1-2
     
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    5
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    30
    years
    Problems during the pregnancy were assessed, such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication Use

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 5
     
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    30
    years
    Medication use assesses, among others, dosage, duration, and ATC code of any medications used, if available.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health problems and treatments

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    30
    years
    Health problems and treatments contains questions about health problems, diseases and disorders, including handicaps, treatments (also for mental health problems) and hospitalization.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Surgery and anesthesia

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YC_BS1 YC_BS2 YE_ATTEF2 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    30
    years
    Surgery and anesthesia assesses any experienced surgery, including the insertion of grommets and the removal of tonsils, and general anesthesia.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
    0
    5
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    30
    years
    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Sleep characteristics and sleep problems

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 2 years
     
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    30
    years
    Sleep characteristics and sleep problems assesses infant's sleep and sleep regulation, including sleep patterns, habits and sleeping problems.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Healthcare Utilization

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 3 years 4 years 5-6 years
     
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    30
    years
    Healthcare Utilization assesses the frequency of visits to a doctor (e.g. a general practitioner, peadiatrician, ENT), the reasons for such visits, concrete information about the visit (e.g., name of the hospital and doctor), the frequency of hospitalization, and the use of alternative medicine. It also assesses the growth (length, weight, head...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medical history - Child

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 4 years 5-6 years 9-10 years 13-14 years 17-18 years
     
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    years
    Medical history of the child assesses the general health and medical history of the child. It includes items regarding, distress, respiratory problems (e.g., coughing, sneezing, tightness of chest), pain and perception of pain, abdominal problems (e.g., stomach aches, bowel movements, constipation), teeth problems (e.g., tooth ache, difficulty eating,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Epilepsy symptoms

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 5-6 years
     
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    30
    years
    Epilepsy symptoms assesses the presence of unexpected incidents and attacks in the medical history of the child. Items include epileptic seizures, seizure/febrile convulsion, a breath-holding spell, or lost consciousness.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Child Development Inventory (CDI) - Motor development

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  6 months 1 year 1.5 years 2 years 4 years
     
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    30
    years
    The Child Development Inventory (CDI) was used to assess fine and gross motor development. The fine motor development scale measures eye-hand coordination - from picking up objects to scribbling and drawing. The gross motor development scale measures walking, running, climbing, jumping, riding, balance, and coordination. Each scale consists of 30 yes/no...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Pain Coping Inventory (PCI)

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 years 3 years
     
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    30
    years
    The Pain Coping Inventory (PCI) assesses the maternal response to pain in herself, using 9 questions that were answered on a 4-point Likert scale (1 = seldom or never, 2 = sometimes, 3 = often, 4 = almost, or always), such as ‘I do something that I find enjoyable’.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Excessive crying

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year
     
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    30
    years
    Excessive crying assesses whether participants feel like their baby cries a lot (yes/no), whether the child cried for more than 3 hours a day during the last week (yes/no), on how many days this occurred, and how many hours a day the baby cried. Excessive crying can be identified as crying for 3 hours per day on 3 days in the preceding week using the...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medical history - Fever

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  6 months 3 years 5-6 years
     
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    30
    years
    The Medical history - Fever questionnaire includes items about the fever history of children, including whether the child had a fever last year, associated symptoms, and doctor visits when the child had the symptoms.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Toilet training

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 years 3 years
     
    0
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    30
    years
    Toilet training contains items that assess a child's nappy wearing habits and potty/toilet training.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Pain List

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 years 3 years 5-6 years
     
    0
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    30
    years
    The Perquin’s Pain List is used to measure child's chronic pain. The Perquin’s Pain List focuses on the last 3 months, and comprises categorical yes/no-items regarding the experience and the characteristics of pain, such as the severity, duration, when, where, how often, and cause (rated on different Likert scales).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Child Development Inventory (CDI) - Receptive and expressive language

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  1 year 1.5 years
     
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    30
    years
    The Child Development Inventory (CDI) was used to assess receptive and expressive language using age-appropriate items from the expressive language scale and the language comprehension scale. The scales ask caregivers to indicate on yes/no-items what sounds or words the child produces or understands.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health States Classification System for Preschool Children

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  3 years
     
    0
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    years
    The Health States Classification System for Preschool Children assesses a child's general capabilities, including sight, hearing, speaking, walking and moving around, hands, personal care, emotions, learning and remembering, thinking and solving problems, pain and discomfort, general health and behavior.
    Created October 17, 2024 • Updated October 20, 2024

  • measure CoRonavIruS health Impact Survey (CRISIS)

    Study:YOUth
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Baby and Child  20 weeks 30 weeks 0 months 5 months 10 months 3 years 6 years

    Child and Adolescent  9 years 12 years
     
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    30
    years
    The CoRonavIruS health Impact Survey (CRISIS) assesses mental, behavioral, and physical health effects of the Covid-19 pandemic, as well as a range of pandemic-related and pre-existing risk and protective factors. The baseline version of the CRISIS assesses the following domains: background information about the household, physical and mental health prior...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Lifestyle

    Study:YOUth
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Baby and Child  20 weeks 30 weeks 5 months 10 months 3 years 6 years

    Child and Adolescent  9 years 12 years
     
    0
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    30
    years
    Lifestyle was assessed concerning vitamins, medication, exposure during pregnancy, alcohol, smoking, substance (ab)use, physical activity, and sleep (Pittsburgh Sleep Quality Index).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Child health

    Study:YOUth
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Baby and Child  5 months 10 months 3 years 6 years

    Child and Adolescent  9 years 12 years
     
    0
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    25
    30
    years
    Child health was assessed using a questionnaire about the child's general health, physical complaints, diseases, allergies, surgeries, medication and vaccinations.
    Created October 17, 2024 • Updated October 20, 2024
You can also access this registry using the API (see API Docs).