• measure Major events

    Study:Netherlands Twin Register
    Mode of collection: Interview
    Available measurements:
    Young Netherlands Twin Register  YC_DSC YC_ADHMRI
     
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    Major events assesses any major events that occurred causing participant to judge their behavior differently than they would a month ago.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Viral infections

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3
     
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    Viral and parasitic infection loads, for instance Influenza A, Influenza B, Herpes Simplex Virus 1 (HSV1), Herpes Simplex Virus 2 (HSV2), Toxoplasma Gondii, Cytomegalovirus (CMV), Epstein-Barr Virus (EBV), and Procalcitonin, measured with traditional enzymatic tests, such as Enzyme-Linked Immunosorbent Assays (ELISA).
    Created June 5, 2024 • Updated June 20, 2024

  • measure Subjective exercise ability

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQ14 YS_DHBQ16 YC_DSC YE_FITNSS follow-up
     
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    Subjective exercise ability was assessed in an online survey. Participants were asked to rate how good they were at sports and how they compared themselves to their peers on sport ability, stamina, and muscle strenght.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Urine sample

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YE_COG18
     
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    First-morning, spot, or 24 hour urine sample.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Anthropometry

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    Anthropometric measurements include height, weight, body mass index (BMI), and body circumferences.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Strengths and Weaknesses of Attention-Deficit/Hyperactivity Disorder Symptoms...

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YC_DSC YE_ATTEF2 YC_ADHMRI
     
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    The Strengths and Weaknesses of Attention-Deficit/Hyperactivity Disorder Symptoms and Normal Behavior Scale (SWAN) is an 18-item parent questionnaire for children and adolescents under 18 years old. This rating scale includes positive “weaknesses” and negative “strengths” scoring, assessing symptoms of Attention-Deficit/Hyperactivity Disorder.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Child Behavior Checklist (CBCL) 6-18

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_7 YS_10 YS_12 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_ATTEF2 YC_ADHMRI YS_TRIP age 4 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    The Child Behavior Check List (CBCL 6-18) is part of the Achenbach System of Empirically Based Assessment (ASEBA) taxonomy and is a validated instrument to assess psychiatric symptoms in both clinical and research settings. The ASEBA parent report version for youths 6 to 18 years of age potentially includes the syndrome scales Anxious/Depressed,...
    Created June 5, 2024 • Updated June 20, 2024

  • measure Side jobs and household chores

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YC_DSC YE_ATTEF2 YC_ADHMRI YE_COG12 YS_TRIP age 4 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    Side jobs and household chores contains questions about side jobs (parttime work), volunteer work, household chores, and other main daytime activities.
    Created June 5, 2024 • Updated June 20, 2024

  • measure School results and performance

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQ14 YS_DHBQ16 YC_BS1 YC_BS2 YC_DSC YE_ATTEF2 YC_ADHMRI YE_COG12 YS_TRIP age 4 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    School results and performance assesses the child's behavior and results at primary and secondary school. Questions include reports of the child's performance in subjects at primary (gymnastics, reading, arithmetic, language, geography) and secondary school (mathematics, languages such as English, French and German, geography, history, natural sciences);...
    Created June 5, 2024 • Updated June 20, 2024

  • measure Birth

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 1-2
     
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    Birth assesses information on pregnancy duration, placenta and chorionicity, mode of delivery, complications around the delivery, and incubator time.
    Created June 5, 2024 • Updated June 20, 2024

  • measure CITO score

    Study:Netherlands Twin Register
    Mode of collection: MeasurementsAndTests    Behavioral/cognitive task
    Available measurements:
    Young Netherlands Twin Register  YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS1 YC_BS2 YE_ATTEF2 YS_CITO YS_DT YS_TRIP age 12
     
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    The CITO-test is a standardized test for educational achievement that is administered in the final grade (when children are 11 or 12 years old) of elementary school. The CITO-test consists of multiple choice items in 4 different educational skills, namely Arithmetic, Language, Study Skills, and Science and Social Studies. All scores on the scales are...
    Created June 5, 2024 • Updated June 20, 2024

  • measure Demographics

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3 YS_REF YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF1 YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YS_DT YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    Demographic information includes age and year of birth, biological sex and gender, country and place of birth, current zipcode, nationality, religion, educational attainment, spoken laguages, and information on multiple births.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Family Composition

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2
     
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    Family composition was assessed, including multiples in the (extended) family, twins in the extended family, number of siblings and number of children.
    Created June 5, 2024 • Updated June 20, 2024

  • measure School Situation

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YS_DT YE_COG12 YE_COG18 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    School situations contains questions about children's schoolgoing situation, including the type of school the children attend, whether twins attend the same or different school or class, whether the child has ever skipped or repeated grades, and truancy.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Leisure Activities

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS1 YC_BS2 YC_DSC YE_ATTEF2 YC_ADHMRI YE_COG12 YS_TRIP age 4 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    Leisure Activities consists of questions about activities performed in leisure time, hobbies and time spend thereon.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Stressful life events during pregnancy

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
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    Stressful life events or stressful periods during pregnancy were reported by participants.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Pubertal Development

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YC_ADHMRI YE_COG18 YS_TRIP age 1-2
     
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    Pubertal Development was assessed through questions about breast growth, menstruation, shaving, deepening of the voice, and growth spurts.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Work demographics

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_3 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YE_FITNSS YE_ATTEF2 YS_DT YE_COG12 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    years
    Work demographics consists of questions about working, hours of working, maternity/paternity leave, and type of profession.
    Created June 5, 2024 • Updated June 20, 2024
You can also access this registry using the API (see API Docs).