• measure Healthcare Utilization

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 3 years 4 years 5-6 years
     
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    Healthcare Utilization assesses the frequency of visits to a doctor (e.g. a general practitioner, peadiatrician, ENT), the reasons for such visits, concrete information about the visit (e.g., name of the hospital and doctor), the frequency of hospitalization, and the use of alternative medicine. It also assesses the growth (length, weight, head...
    Created June 5, 2024 • Updated September 19, 2024

  • measure Medical history - Child

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 4 years 5-6 years 9-10 years 13-14 years 17-18 years
     
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    Medical history of the child assesses the general health and medical history of the child. It includes items regarding, distress, respiratory problems (e.g., coughing, sneezing, tightness of chest), pain and perception of pain, abdominal problems (e.g., stomach aches, bowel movements, constipation), teeth problems (e.g., tooth ache, difficulty eating,...
    Created June 5, 2024 • Updated September 19, 2024

  • measure Child Development Inventory (CDI) - Motor development

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  6 months 1 year 1.5 years 2 years 4 years
     
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    The Child Development Inventory (CDI) was used to assess fine and gross motor development. The fine motor development scale measures eye-hand coordination - from picking up objects to scribbling and drawing. The gross motor development scale measures walking, running, climbing, jumping, riding, balance, and coordination. Each scale consists of 30 yes/no...
    Created June 5, 2024 • Updated September 19, 2024

  • measure Lifetime pregnancy history

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  4 years 5-6 years
     
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    Lifetime pregnancy history includes questions about mothers' pregnancies (including possible miscarriages or abortions) during the entire lifetime, assessing the frequency of pregnancies, the course of the pregnancy, pregnancy complications and birth outcomes.
    Created June 5, 2024 • Updated September 19, 2024

  • measure Air pollution

    Study:Generation R
    Mode of collection: Observation
    Available measurements:
    Generation R  Early pregnancy Mid pregnancy Late pregnancy Birth 6 weeks 2 months 3 months 4 months 6 months 1 year 1.5 years 2 years 2.5 years 3 years 4 years 5-6 years 7 years 8 years 9-10 years 11 years 12 years 13-14 years 17-18 years
     
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    For all participants, exposure to air pollutants at each geocoded address was assessed using continuous monitoring data and Geographic Information Systems (GIS)-based modelling techniques, considering the spatial and temporal variation in air pollution.
    Created June 5, 2024 • Updated September 19, 2024

  • measure Medication use

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6

    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
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    Medication use assesses whether participants use medication and contraceptive pills, including their name, dosage and duration of use.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Soma Assessment Interview (SAI)

    Study:TRAILS
    Mode of collection: Interview
    Available measurements:
    The Next Generation  NEXT - T4
     
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    years
    The Soma Assessment Interview (SAI) is a structured interview in which the number and severity of physical complaints can be assessed in children. Specifically, the SAI allows to investigate which symptoms cannot be explained by a known physical illness (functional complaints). The SAI consists of questions about known physical illnesses (e.g., asthma,...
    Created June 5, 2024 • Updated June 20, 2024

  • measure Impairment Rating Scale (IRS)

    Study:TRAILS
    Mode of collection: Interview
    Available measurements:
    The Next Generation  NEXT - T3 NEXT - T4 NEXT - T5
     
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    years
    The Impairment Rating Scale (IRS) is a validated assessment of impairment that includes items on relationships with peers and adults, and academic progress.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Medical history

    Study:TRAILS
    Mode of collection: Interview
    Available measurements:
    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
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    years
    Medical history assesses health services utilization and medication use, focusing specifically on pregnancy.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Sleep and Settle Questionnaire (SSQ)

    Study:TRAILS
    Mode of collection: Interview
    Available measurements:
    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
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    years
    The Sleep and Settle Questionnaire (SSQ) is a validated assessment of infants' sleep and settling behavior and parent’s level of concern with such behaviors. It includes sleep patterns, time to settle to sleep, duration of crying, baby temperament, parental confidence, parental attributions to solve unsettlement, and parental distress.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Infant growth

    Study:TRAILS
    Mode of collection: Other    Anthropometrics/Body measures
    Available measurements:
    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4
     
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    years
    Infant growth was measured as the child's length, weight, and head circumference as stated in the child's growth booklet.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Pregnancy Problems

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP age 1-2
     
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    Problems during the pregnancy were assessed, such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS).
    Created June 5, 2024 • Updated June 20, 2024

  • measure Medication Use

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 5
     
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    Medication use assesses, among others, dosage, duration, and ATC code of any medications used, if available.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Health problems and treatments

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    Health problems and treatments contains questions about health problems, diseases and disorders, including handicaps, treatments (also for mental health problems) and hospitalization.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Surgery and anesthesia

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YC_BS1 YC_BS2 YE_ATTEF2 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    Surgery and anesthesia assesses any experienced surgery, including the insertion of grommets and the removal of tonsils, and general anesthesia.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
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    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created June 5, 2024 • Updated June 20, 2024

  • measure Length, head circumference, weight and vaccinations

    Study:YOUth
    Mode of collection: MeasurementsAndTests    Anthropometrics/Body measures
    Available measurements:
    Baby and Child  10 months 3 years 6 years
     
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    Information about height, head circumference, weight and vaccinations was obtained from the growth booklet (Groeiboekje), a booklet in which child development is assessed by a public health and consultation bureau.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Length, weight, head circumference

    Study:YOUth
    Mode of collection: MeasurementsAndTests    Anthropometrics/Body measures
    Available measurements:
    Baby and Child  3 years 6 years

    Child and Adolescent  9 years 12 years
     
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    years
    The body measures height, head circumference, and weight were measured by the experimenter in centimeters and kilos respectively. Participants were asked to take off any shoes and large vests and sweaters that could affect these measures.
    Created June 5, 2024 • Updated June 20, 2024

  • measure CoRonavIruS health Impact Survey (CRISIS)

    Study:YOUth
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Baby and Child  20 weeks 30 weeks 0 months 5 months 10 months 3 years 6 years

    Child and Adolescent  9 years 12 years
     
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    The CoRonavIruS health Impact Survey (CRISIS) assesses mental, behavioral, and physical health effects of the Covid-19 pandemic, as well as a range of pandemic-related and pre-existing risk and protective factors. The baseline version of the CRISIS assesses the following domains: background information about the household, physical and mental health prior...
    Created June 5, 2024 • Updated June 20, 2024

  • measure Lifestyle

    Study:YOUth
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Baby and Child  20 weeks 30 weeks 5 months 10 months 3 years 6 years

    Child and Adolescent  9 years 12 years
     
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    Lifestyle was assessed concerning vitamins, medication, exposure during pregnancy, alcohol, smoking, substance (ab)use, physical activity, and sleep (Pittsburgh Sleep Quality Index).
    Created June 5, 2024 • Updated June 20, 2024
You can also access this registry using the API (see API Docs).