• measure Pregnancy Problems

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP age 1-2
     
    0
    5
    10
    15
    20
    25
    30
    years
    Problems during the pregnancy were assessed, such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication Use

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 5
     
    0
    5
    10
    15
    20
    25
    30
    years
    Medication use assesses, among others, dosage, duration, and ATC code of any medications used, if available.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health problems and treatments

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
    5
    10
    15
    20
    25
    30
    years
    Health problems and treatments contains questions about health problems, diseases and disorders, including handicaps, treatments (also for mental health problems) and hospitalization.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Surgery and anesthesia

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YC_BS1 YC_BS2 YE_ATTEF2 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
    5
    10
    15
    20
    25
    30
    years
    Surgery and anesthesia assesses any experienced surgery, including the insertion of grommets and the removal of tonsils, and general anesthesia.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
    0
    5
    10
    15
    20
    25
    30
    years
    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Subjective exercise ability

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQ14 YS_DHBQ16 YC_DSC YE_FITNSS follow-up
     
    0
    5
    10
    15
    20
    25
    30
    years
    Subjective exercise ability was assessed in an online survey. Participants were asked to rate how good they were at sports and how they compared themselves to their peers on sport ability, stamina, and muscle strenght.
    Created October 17, 2024 • Updated October 20, 2024

  • measure General health during Covid-19 pandemic

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Covid questionnaires
     
    0
    5
    10
    15
    20
    25
    30
    years
    General health, pregnancy and chronic diseases were asessed during the Covid-19 pandemic.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Chronic somatic disease

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Covid questionnaires
     
    0
    5
    10
    15
    20
    25
    30
    years
    The Chronic somatic disease questionnaire asks the child's chronic diseases, illness duration and frequency, and whether the child received medical treatment. Items were assessed during the Covid-19 pandemic.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Covid-19 symptoms

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Covid questionnaires
     
    0
    5
    10
    15
    20
    25
    30
    years
    Covid-19-related symptoms were assessed during the Covid-19 pandemic, such as headache, pain in the chest or heart area, nausea, sore muscles, difficult breathing, sore throat, runny noise, coughing, fever, loss of smell or taste, etc.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Covid-19 infection

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Covid questionnaires
     
    0
    5
    10
    15
    20
    25
    30
    years
    The taking of a Covid-19 test, related test results, potential infection with the Covid-19 corona virus, the starting date and sources and received treatment were assessed during the Covid-19 pandemic.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication use

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Covid questionnaires
     
    0
    5
    10
    15
    20
    25
    30
    years
    Medication use of participants in the last 14 days was assessed during the Covid-19 pandemic. A non-exhaustive list of medication was provided and participants could also add medication that they used outside this list. Medications included blood pressure lowering agents, inhalers, corticosteroids, cholesterol medication, diabetes medication, remedies for...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Avoidance of healthcare seeking

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Covid questionnaires
     
    0
    5
    10
    15
    20
    25
    30
    years
    Avoidance of healthcare seeking assesses whether participants avoided healthcare visits in the last 14 days, associated health complaints and the reason for such avoidance. Healthcare avoidance was assessed during the Covid-19 pandemic.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Covid-19 specific items

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Covid questionnaires
     
    0
    5
    10
    15
    20
    25
    30
    years
    Covid-19 specific items including the extent and impact of life changes induced by the Covid-19 pandemic on the mental health and behavior of individuals and families were assessed. Suspected Covid-19 exposure and worry about getting infected were included. Items were assessed during the Covid-19 pandemic.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Asthma

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T3 POP - T4 POP - T5

    Clinical cohort  CC - T1 CC - T3 CC - T4 CC - T5
     
    0
    5
    10
    15
    20
    25
    30
    years
    Questionnaire assessing asthma and asthma-related symptoms.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication use

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6

    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
    0
    5
    10
    15
    20
    25
    30
    years
    Medication use assesses whether participants use medication and contraceptive pills, including their name, dosage and duration of use.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health services utilization

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6 CC - T7
     
    0
    5
    10
    15
    20
    25
    30
    years
    Health services utilization is a self-developed questionnaire that assesses the use of several physical and mental healthcare services in the past period, such as the general practitioner/doctor, social workers, home care, district nursing, physiotherapist, crisis services, psychiatrist, psychologist, self-help groups, etc.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Pain

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T2 POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T2 CC - T3 CC - T4 CC - T5 CC - T6
     
    0
    5
    10
    15
    20
    25
    30
    years
    The pain questionnaire is a self-developed questionnaire that assesses (chronic) pain, such as headache, abdominal pain, and pain in the locomotor system.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Physical health

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6 CC - T7
     
    0
    5
    10
    15
    20
    25
    30
    years
    The physical health questions assess whether the participant has experienced any accidents or common health problems, including cuts, bruises, broken bones, allergies, infections, and different kinds of pain (e.g., headache, stomach ache, pain in the neck, back or shoulders).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Nottingham Health Profile (NHP)

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T4 POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T4 CC - T5 CC - T6 CC - T7
     
    0
    5
    10
    15
    20
    25
    30
    years
    The Nottingham Health Profile (NHP) is a validated assessment of sleep problems. It includes sleeping pill use, early awakening, difficulties falling asleep and bad quality sleep.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Familial pathology

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4
     
    0
    5
    10
    15
    20
    25
    30
    years
    Familial pathology assesses family burden, such as handicaps, chronic diseases, and mental health problems of relatives.
    Created October 17, 2024 • Updated October 20, 2024
You can also access this registry using the API (see API Docs).