• measure Pregnancy Problems

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP age 1-2
     
    0
    5
    10
    15
    20
    25
    30
    years
    Problems during the pregnancy were assessed, such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS).
    Created October 17, 2024 • Updated October 20, 2024

  • measure General Health

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YE_FITNSS YE_ATTEF2
     
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    10
    15
    20
    25
    30
    years
    General health addresses the question: "How would you describe your health in general?"
    Created October 17, 2024 • Updated October 20, 2024

  • measure Headache and Migraine

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2
     
    0
    5
    10
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    20
    25
    30
    years
    Headache and Migraine assesses the presence, frequency, intensity, symptomology, and duration of severe headache/migraine.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication Use

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 5
     
    0
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    10
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    20
    25
    30
    years
    Medication use assesses, among others, dosage, duration, and ATC code of any medications used, if available.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health problems and treatments

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    10
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    30
    years
    Health problems and treatments contains questions about health problems, diseases and disorders, including handicaps, treatments (also for mental health problems) and hospitalization.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Surgery and anesthesia

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YC_BS1 YC_BS2 YE_ATTEF2 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    30
    years
    Surgery and anesthesia assesses any experienced surgery, including the insertion of grommets and the removal of tonsils, and general anesthesia.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
    0
    5
    10
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    25
    30
    years
    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Subjective exercise ability

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQ14 YS_DHBQ16 YC_DSC YE_FITNSS follow-up
     
    0
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    10
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    25
    30
    years
    Subjective exercise ability was assessed in an online survey. Participants were asked to rate how good they were at sports and how they compared themselves to their peers on sport ability, stamina, and muscle strenght.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Language and stuttering

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2
     
    0
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    10
    15
    20
    25
    30
    years
    Language development and stuttering contains questions about the child's speech development and the parent's and child's stuttering. Questions include, for example, "Have you ever stuttered?", "Did the stuttering bother you?", "Has your child ever stuttered?", "Does the child slowly repeat a sound from a sentence?", and "Does the child prolong a sound...
    Created October 17, 2024 • Updated October 20, 2024

  • measure General health during Covid-19 pandemic

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Covid questionnaires
     
    0
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    10
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    20
    25
    30
    years
    General health, pregnancy and chronic diseases were asessed during the Covid-19 pandemic.
    Created October 17, 2024 • Updated October 20, 2024

  • measure EuroQol- 5 Dimension (EQ-5D)

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Early pregnancy 2 months 17-18 years
     
    0
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    30
    years
    The EuroQol-5 Dimension (EQ-5D) is an instrument which evaluates the generic quality of life. The EQ-5D consists 2 parts: the EQ-5D descriptive system and the visual analogue scale (VAS). The descriptive system includes five one question for each of the five dimensions that include mobility, self-care, usual activities, pain/discomfort, and...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Muscle function and bone strength (Mechanography)

    Study:Generation R
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Generation R  17-18 years
     
    0
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    30
    years
    Muscle function and bone strength were assessed using mechanography. This includes a mechanographic record of jumping movements on a specially designed springboard. Relevant functional parameters such as strength and spot force are measured to determine coordination, muscle function and muscle-bone relationship.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Chronic somatic disease

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Covid questionnaires
     
    0
    5
    10
    15
    20
    25
    30
    years
    The Chronic somatic disease questionnaire asks the child's chronic diseases, illness duration and frequency, and whether the child received medical treatment. Items were assessed during the Covid-19 pandemic.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Oral health

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  9-10 years 13-14 years 17-18 years
     
    0
    5
    10
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    25
    30
    years
    Oral health assesses the health of the child's teeth. It includes items on tooth brushing frequency, visits to the dentist, subjective orthodontic treatment need, type of orthodontic treatment, and subjective result of the orthodontic treatment.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Covid-19 symptoms

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Covid questionnaires
     
    0
    5
    10
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    20
    25
    30
    years
    Covid-19-related symptoms were assessed during the Covid-19 pandemic, such as headache, pain in the chest or heart area, nausea, sore muscles, difficult breathing, sore throat, runny noise, coughing, fever, loss of smell or taste, etc.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Covid-19 infection

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Covid questionnaires
     
    0
    5
    10
    15
    20
    25
    30
    years
    The taking of a Covid-19 test, related test results, potential infection with the Covid-19 corona virus, the starting date and sources and received treatment were assessed during the Covid-19 pandemic.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medical history - Child

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 4 years 5-6 years 9-10 years 13-14 years 17-18 years
     
    0
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    25
    30
    years
    Medical history of the child assesses the general health and medical history of the child. It includes items regarding, distress, respiratory problems (e.g., coughing, sneezing, tightness of chest), pain and perception of pain, abdominal problems (e.g., stomach aches, bowel movements, constipation), teeth problems (e.g., tooth ache, difficulty eating,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Audiometry

    Study:Generation R
    Mode of collection: MeasurementsAndTests    Biological sample/measurement
    Available measurements:
    Generation R  9-10 years 13-14 years 17-18 years
     
    0
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    25
    30
    years
    Audiometry measurements evaluate an individual's hearing abilities, with pure-tone audiometry assessing hearing sensitivity across different frequencies and intensities, and tympanometry measuring the middle ear's response to changes in air pressure.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication use

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Covid questionnaires
     
    0
    5
    10
    15
    20
    25
    30
    years
    Medication use of participants in the last 14 days was assessed during the Covid-19 pandemic. A non-exhaustive list of medication was provided and participants could also add medication that they used outside this list. Medications included blood pressure lowering agents, inhalers, corticosteroids, cholesterol medication, diabetes medication, remedies for...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Child Oral Health Impact Profile (COHIP) - short form

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  9-10 years 13-14 years 17-18 years
     
    0
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    25
    30
    years
    The Child Oral Health Impact Profile (COHIP) - short form is designed to measure the impact of oral health on children's quality of life. It consists of 11 questions about the child's oral health and how it affects their social-emotional wellbeing, functional wellbeing, and school and peer interaction. The items are scored on a 5-point Likert scale.
    Created October 17, 2024 • Updated October 20, 2024
You can also access this registry using the API (see API Docs).