• measure Handicap index

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YE_ATTEF3
     
    0
    5
    10
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    25
    30
    years
    In the Handicap index, participants rated statements about how handicapped they had felt during the task performance.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Surgery and anesthesia

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YC_BS1 YC_BS2 YE_ATTEF2 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    10
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    20
    25
    30
    years
    Surgery and anesthesia assesses any experienced surgery, including the insertion of grommets and the removal of tonsils, and general anesthesia.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
    0
    5
    10
    15
    20
    25
    30
    years
    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure State-Trait Anxiety Inventory (STAI)

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YE_ATTEF3
     
    0
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    10
    15
    20
    25
    30
    years
    The State-Trait Anxiety Inventory (STAI) assesses anxiety. It distinguishes between a general proneness to anxious behavior rooted in the personality and anxiety as a fleeting emotional state.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Implicit Theories of Intelligence Scale for Children (ITIS)

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YE_ATTEF3
     
    0
    5
    10
    15
    20
    25
    30
    years
    The Implicit Theories of Intelligence Scale for Children (ITIS) measures growth mindset and the extent to which a child believes that her or his intelligence can be improved.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Subjective exercise ability

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQ14 YS_DHBQ16 YC_DSC YE_FITNSS follow-up
     
    0
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    10
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    25
    30
    years
    Subjective exercise ability was assessed in an online survey. Participants were asked to rate how good they were at sports and how they compared themselves to their peers on sport ability, stamina, and muscle strenght.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Anthropometry

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    10
    15
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    25
    30
    years
    Anthropometric measurements include height, weight, body mass index (BMI), and body circumferences.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Birth

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 1-2
     
    0
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    10
    15
    20
    25
    30
    years
    Birth assesses information on pregnancy duration, placenta and chorionicity, mode of delivery, complications around the delivery, and incubator time.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Demographics

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3 YS_REF YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF1 YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YS_DT YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    10
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    25
    30
    years
    Demographic information includes age and year of birth, biological sex and gender, country and place of birth, current zipcode, nationality, religion, educational attainment, spoken laguages, and information on multiple births.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Family Composition

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2
     
    0
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    10
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    20
    25
    30
    years
    Family composition was assessed, including multiples in the (extended) family, twins in the extended family, number of siblings and number of children.
    Created October 17, 2024 • Updated October 20, 2024

  • measure School Situation

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YS_DT YE_COG12 YE_COG18 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    10
    15
    20
    25
    30
    years
    School situations contains questions about children's schoolgoing situation, including the type of school the children attend, whether twins attend the same or different school or class, whether the child has ever skipped or repeated grades, and truancy.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Stressful life events during pregnancy

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
    0
    5
    10
    15
    20
    25
    30
    years
    Stressful life events or stressful periods during pregnancy were reported by participants.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Pubertal Development

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YC_ADHMRI YE_COG18 YS_TRIP age 1-2
     
    0
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    10
    15
    20
    25
    30
    years
    Pubertal Development was assessed through questions about breast growth, menstruation, shaving, deepening of the voice, and growth spurts.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Work demographics

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_3 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YE_FITNSS YE_ATTEF2 YS_DT YE_COG12 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    10
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    20
    25
    30
    years
    Work demographics consists of questions about working, hours of working, maternity/paternity leave, and type of profession.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Asthma

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T3 POP - T4 POP - T5

    Clinical cohort  CC - T1 CC - T3 CC - T4 CC - T5
     
    0
    5
    10
    15
    20
    25
    30
    years
    Questionnaire assessing asthma and asthma-related symptoms.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication use

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6

    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
    0
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    10
    15
    20
    25
    30
    years
    Medication use assesses whether participants use medication and contraceptive pills, including their name, dosage and duration of use.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health behaviours

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T3 CC - T4 CC - T5 CC - T6
     
    0
    5
    10
    15
    20
    25
    30
    years
    The assessment of lifestyle includes assessments of physical activity, sports, and diet.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health services utilization

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6 CC - T7
     
    0
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    10
    15
    20
    25
    30
    years
    Health services utilization is a self-developed questionnaire that assesses the use of several physical and mental healthcare services in the past period, such as the general practitioner/doctor, social workers, home care, district nursing, physiotherapist, crisis services, psychiatrist, psychologist, self-help groups, etc.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Egna Minnen Betraffande Uppfostran Child (EMBU-C)

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T4

    Clinical cohort  CC - T1 CC - T4
     
    0
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    10
    15
    20
    25
    30
    years
    The Egna Minnen Betraffande Uppfostran (EMBU) is a self-report questionnaire that assesses perceived parental rearing style in children, comprising 4 subscales: rejection, emotional warmth, control attempts/overprotection, and favoring subjects.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Substance use

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6 CC - T7
     
    0
    5
    10
    15
    20
    25
    30
    years
    Substance use assesses the use and extent of use of nicotine (smoking), alcohol, cannabis, and other drugs.
    Created October 17, 2024 • Updated October 20, 2024
You can also access this registry using the API (see API Docs).