• measure Pregnancy Problems

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP age 1-2
     
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    5
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    30
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    Problems during the pregnancy were assessed, such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication Use

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 5
     
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    30
    years
    Medication use assesses, among others, dosage, duration, and ATC code of any medications used, if available.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health problems and treatments

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    30
    years
    Health problems and treatments contains questions about health problems, diseases and disorders, including handicaps, treatments (also for mental health problems) and hospitalization.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Surgery and anesthesia

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YC_BS1 YC_BS2 YE_ATTEF2 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    30
    years
    Surgery and anesthesia assesses any experienced surgery, including the insertion of grommets and the removal of tonsils, and general anesthesia.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
    0
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    30
    years
    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Physical characteristics mother and child

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  5-6 years
     
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    30
    years
    Physical characteristics assesses the hair, eye and skin color of mother and child.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Healthcare Utilization

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 3 years 4 years 5-6 years
     
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    years
    Healthcare Utilization assesses the frequency of visits to a doctor (e.g. a general practitioner, peadiatrician, ENT), the reasons for such visits, concrete information about the visit (e.g., name of the hospital and doctor), the frequency of hospitalization, and the use of alternative medicine. It also assesses the growth (length, weight, head...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medical history - Child

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 4 years 5-6 years 9-10 years 13-14 years 17-18 years
     
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    years
    Medical history of the child assesses the general health and medical history of the child. It includes items regarding, distress, respiratory problems (e.g., coughing, sneezing, tightness of chest), pain and perception of pain, abdominal problems (e.g., stomach aches, bowel movements, constipation), teeth problems (e.g., tooth ache, difficulty eating,...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Epilepsy symptoms

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 5-6 years
     
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    30
    years
    Epilepsy symptoms assesses the presence of unexpected incidents and attacks in the medical history of the child. Items include epileptic seizures, seizure/febrile convulsion, a breath-holding spell, or lost consciousness.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Lifetime pregnancy history

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  4 years 5-6 years
     
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    years
    Lifetime pregnancy history includes questions about mothers' pregnancies (including possible miscarriages or abortions) during the entire lifetime, assessing the frequency of pregnancies, the course of the pregnancy, pregnancy complications and birth outcomes.
    Created October 17, 2024 • Updated October 20, 2024

  • measure PROP taster status

    Study:Generation R
    Mode of collection: MeasurementsAndTests    Behavioral/cognitive task
    Available measurements:
    Generation R  5-6 years
     
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    years
    PROP taster status was determined by using a method developed by Keller et al. (2002). Children were classified as "tasters" or "non-tasters" by giving them 5 ml of 0.56 mmol l-1 solution of PROP (6-n-propylthiouracil; pharmacy of Erasmus MC, Rotterdam, The Netherlands) after which they were asked the question: "Do you taste anything?"
    Created October 17, 2024 • Updated October 20, 2024

  • measure Accidents

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  6 months 1.5 years 5-6 years
     
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    30
    years
    Accidents assesses home and traffic accidents that a child has experienced.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medical history - Fever

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  6 months 3 years 5-6 years
     
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    30
    years
    The Medical history - Fever questionnaire includes items about the fever history of children, including whether the child had a fever last year, associated symptoms, and doctor visits when the child had the symptoms.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Air pollution

    Study:Generation R
    Mode of collection: Observation
    Available measurements:
    Generation R  Early pregnancy Mid pregnancy Late pregnancy Birth 6 weeks 2 months 3 months 4 months 6 months 1 year 1.5 years 2 years 2.5 years 3 years 4 years 5-6 years 7 years 8 years 9-10 years 11 years 12 years 13-14 years 17-18 years
     
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    years
    For all participants, exposure to air pollutants at each geocoded address was assessed using continuous monitoring data and Geographic Information Systems (GIS)-based modelling techniques, considering the spatial and temporal variation in air pollution.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Pain List

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 years 3 years 5-6 years
     
    0
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    30
    years
    The Perquin’s Pain List is used to measure child's chronic pain. The Perquin’s Pain List focuses on the last 3 months, and comprises categorical yes/no-items regarding the experience and the characteristics of pain, such as the severity, duration, when, where, how often, and cause (rated on different Likert scales).
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication use

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6

    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
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    years
    Medication use assesses whether participants use medication and contraceptive pills, including their name, dosage and duration of use.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Impairment Rating Scale (IRS)

    Study:TRAILS
    Mode of collection: Interview
    Available measurements:
    The Next Generation  NEXT - T3 NEXT - T4 NEXT - T5
     
    0
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    30
    years
    The Impairment Rating Scale (IRS) is a validated assessment of impairment that includes items on relationships with peers and adults, and academic progress.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medical history

    Study:TRAILS
    Mode of collection: Interview
    Available measurements:
    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
    0
    5
    10
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    20
    25
    30
    years
    Medical history assesses health services utilization and medication use, focusing specifically on pregnancy.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Sleep and Settle Questionnaire (SSQ)

    Study:TRAILS
    Mode of collection: Interview
    Available measurements:
    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
    0
    5
    10
    15
    20
    25
    30
    years
    The Sleep and Settle Questionnaire (SSQ) is a validated assessment of infants' sleep and settling behavior and parent’s level of concern with such behaviors. It includes sleep patterns, time to settle to sleep, duration of crying, baby temperament, parental confidence, parental attributions to solve unsettlement, and parental distress.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Length, head circumference, weight and vaccinations

    Study:YOUth
    Mode of collection: MeasurementsAndTests    Anthropometrics/Body measures
    Available measurements:
    Baby and Child  10 months 3 years 6 years
     
    0
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    30
    years
    Information about height, head circumference, weight and vaccinations was obtained from the growth booklet (Groeiboekje), a booklet in which child development is assessed by a public health and consultation bureau.
    Created October 17, 2024 • Updated October 20, 2024
You can also access this registry using the API (see API Docs).