• measure Asthma

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T3 POP - T4 POP - T5

    Clinical cohort  CC - T1 CC - T3 CC - T4 CC - T5
     
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    Questionnaire assessing asthma and asthma-related symptoms.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Medication use

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6

    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
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    Medication use assesses whether participants use medication and contraceptive pills, including their name, dosage and duration of use.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Health services utilization

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6 CC - T7
     
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    Health services utilization is a self-developed questionnaire that assesses the use of several physical and mental healthcare services in the past period, such as the general practitioner/doctor, social workers, home care, district nursing, physiotherapist, crisis services, psychiatrist, psychologist, self-help groups, etc.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Chronic conditions

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T5

    Clinical cohort  CC - T5
     
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    Chronic conditions assesses conditions such as fibromyalgia, chronic fatigue syndrome, and irritable bowel syndrome.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Pain

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T2 POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T2 CC - T3 CC - T4 CC - T5 CC - T6
     
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    30
    years
    The pain questionnaire is a self-developed questionnaire that assesses (chronic) pain, such as headache, abdominal pain, and pain in the locomotor system.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Physical health

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6 CC - T7
     
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    The physical health questions assess whether the participant has experienced any accidents or common health problems, including cuts, bruises, broken bones, allergies, infections, and different kinds of pain (e.g., headache, stomach ache, pain in the neck, back or shoulders).
    Created June 5, 2024 • Updated June 20, 2024

  • measure Nottingham Health Profile (NHP)

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T4 POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T4 CC - T5 CC - T6 CC - T7
     
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    years
    The Nottingham Health Profile (NHP) is a validated assessment of sleep problems. It includes sleeping pill use, early awakening, difficulties falling asleep and bad quality sleep.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Pregnancy Problems

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP age 1-2
     
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    Problems during the pregnancy were assessed, such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS).
    Created June 5, 2024 • Updated June 20, 2024

  • measure Medication Use

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 5
     
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    years
    Medication use assesses, among others, dosage, duration, and ATC code of any medications used, if available.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Health problems and treatments

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    Health problems and treatments contains questions about health problems, diseases and disorders, including handicaps, treatments (also for mental health problems) and hospitalization.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Surgery and anesthesia

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YC_BS1 YC_BS2 YE_ATTEF2 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    Surgery and anesthesia assesses any experienced surgery, including the insertion of grommets and the removal of tonsils, and general anesthesia.
    Created June 5, 2024 • Updated June 20, 2024

  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
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    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created June 5, 2024 • Updated June 20, 2024
You can also access this registry using the API (see API Docs).