• measure Pregnancy Problems

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP age 1-2
     
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    5
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    25
    30
    years
    Problems during the pregnancy were assessed, such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS).
    Created October 17, 2024 Updated October 20, 2024
  • measure Medication Use

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 5
     
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    30
    years
    Medication use assesses, among others, dosage, duration, and ATC code of any medications used, if available.
    Created October 17, 2024 Updated October 20, 2024
  • measure Health problems and treatments

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    30
    years
    Health problems and treatments contains questions about health problems, diseases and disorders, including handicaps, treatments (also for mental health problems) and hospitalization.
    Created October 17, 2024 Updated October 20, 2024
  • measure Surgery and anesthesia

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YC_BS1 YC_BS2 YE_ATTEF2 YS_TRIP age 2 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
    0
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    30
    years
    Surgery and anesthesia assesses any experienced surgery, including the insertion of grommets and the removal of tonsils, and general anesthesia.
    Created October 17, 2024 Updated October 20, 2024
  • measure Apgar score

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
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    30
    years
    The Apgar score is a test given to newborns soon after birth to see if extra medical care or emergency care is needed. The Apgar score comprises five components: 1) color, 2) heart rate, 3) reflexes, 4) muscle tone, and 5) respiration, each of which is given a score of 0, 1, or 2. Babies get tested three times: 1 minute after birth, 5 minutes after birth,...
    Created October 17, 2024 Updated October 20, 2024
  • measure Physical characteristics mother and child

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  5-6 years
     
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    30
    years
    Physical characteristics assesses the hair, eye and skin color of mother and child.
    Created October 17, 2024 Updated October 20, 2024
  • measure Healthcare Utilization

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 3 years 4 years 5-6 years
     
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    30
    years
    Healthcare Utilization assesses the frequency of visits to a doctor (e.g. a general practitioner, peadiatrician, ENT), the reasons for such visits, concrete information about the visit (e.g., name of the hospital and doctor), the frequency of hospitalization, and the use of alternative medicine. It also assesses the growth (length, weight, head...
    Created October 17, 2024 Updated October 20, 2024
  • measure Oral health

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  9-10 years 13-14 years 17-18 years
     
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    30
    years
    Oral health assesses the health of the child's teeth. It includes items on tooth brushing frequency, visits to the dentist, subjective orthodontic treatment need, type of orthodontic treatment, and subjective result of the orthodontic treatment.
    Created October 17, 2024 Updated October 20, 2024
  • measure Medical history - Child

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 4 years 5-6 years 9-10 years 13-14 years 17-18 years
     
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    30
    years
    Medical history of the child assesses the general health and medical history of the child. It includes items regarding, distress, respiratory problems (e.g., coughing, sneezing, tightness of chest), pain and perception of pain, abdominal problems (e.g., stomach aches, bowel movements, constipation), teeth problems (e.g., tooth ache, difficulty eating,...
    Created October 17, 2024 Updated October 20, 2024
  • measure Epilepsy symptoms

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  2 months 6 months 1 year 2 years 3 years 5-6 years
     
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    30
    years
    Epilepsy symptoms assesses the presence of unexpected incidents and attacks in the medical history of the child. Items include epileptic seizures, seizure/febrile convulsion, a breath-holding spell, or lost consciousness.
    Created October 17, 2024 Updated October 20, 2024
  • measure Speech and hearing

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  9-10 years 13-14 years
     
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    30
    years
    Speech and hearing assesses children's frequency, duration and volume of headphone use, hearing problems, language problems, speech problems, speech theraphy and lingual upbringing.
    Created October 17, 2024 Updated October 20, 2024
  • measure Child Oral Health Impact Profile (COHIP) - short form

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  9-10 years 13-14 years 17-18 years
     
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    30
    years
    The Child Oral Health Impact Profile (COHIP) - short form is designed to measure the impact of oral health on children's quality of life. It consists of 11 questions about the child's oral health and how it affects their social-emotional wellbeing, functional wellbeing, and school and peer interaction. The items are scored on a 5-point Likert scale.
    Created October 17, 2024 Updated October 20, 2024
  • measure Bone fractures

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  9-10 years 13-14 years 17-18 years
     
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    30
    years
    Bone fractures assesses whether the child and the mother have had broken bones, at what ages, what bone was broken and whether it happened in trauma.
    Created October 17, 2024 Updated October 20, 2024
  • measure Lifetime pregnancy history

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  4 years 5-6 years
     
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    years
    Lifetime pregnancy history includes questions about mothers' pregnancies (including possible miscarriages or abortions) during the entire lifetime, assessing the frequency of pregnancies, the course of the pregnancy, pregnancy complications and birth outcomes.
    Created October 17, 2024 Updated October 20, 2024
  • measure Hearing

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  9-10 years 13-14 years 17-18 years
     
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    30
    years
    Hearing assesses children's hearing health and hearing-related habits. Examples are 'how long per day on average does your child listern to music through head phones?', and 'Does your child ever complain about temporary hearing problems?'.
    Created October 17, 2024 Updated October 20, 2024
  • measure Medical history - Health conditions and disease

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Early pregnancy Mid pregnancy 9-10 years 17-18 years
     
    0
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    30
    years
    Medical history - Health conditions and disease includes a list of general health problems, common diseases, infectious diseases and complaints.
    Created October 17, 2024 Updated October 20, 2024
  • measure Accidents

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  6 months 1.5 years 5-6 years
     
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    30
    years
    Accidents assesses home and traffic accidents that a child has experienced.
    Created October 17, 2024 Updated October 20, 2024
  • measure Pediatric Functional Gastrointestinal Disorders (ROME III criteria)

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  9-10 years
     
    0
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    30
    years
    Pediatric Functional Gastrointestinal Disorders (FGIDs) are a group of common digestive conditions. The ROME III criteria are a set of standardized diagnostic guidelines developed by international experts in pediatric gastroenterology, which identify six types of FGIDs in children: Functional Abdominal Pain (FAP), Irritable Bowel Syndrome IBS),...
    Created October 17, 2024 Updated October 20, 2024
  • measure Medical history - Fever

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  6 months 3 years 5-6 years
     
    0
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    30
    years
    The Medical history - Fever questionnaire includes items about the fever history of children, including whether the child had a fever last year, associated symptoms, and doctor visits when the child had the symptoms.
    Created October 17, 2024 Updated October 20, 2024
  • measure Asthma and allergies

    Study:Generation R
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Generation R  Early pregnancy Mid pregnancy 9-10 years 13-14 years
     
    0
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    25
    30
    years
    Asthma and allergies assesses the presence of health symptoms related to asthma and allergies, including chronic bronchitis, asthma, allergies to housedust, and food and drink allergies. Items about risk factors for asthma (e.g., damp, stains, smoking, pets at home) and allergic reactions are also included. Asthma was assessed using items from the ISAAC.
    Created October 17, 2024 Updated October 20, 2024
You can also access this registry using the API (see API Docs).