• measure Demographics

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3 YS_REF YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF1 YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YS_DT YE_COG12 YE_COG18 YS_TRIP age 1 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    30
    years
    Demographic information includes age and year of birth, biological sex and gender, country and place of birth, current zipcode, nationality, religion, educational attainment, spoken laguages, and information on multiple births.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Family Composition

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YE_COG18 YS_TRIP age 1 YS_TRIP age 2 YS_TRIP age 1-2
     
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    25
    30
    years
    Family composition was assessed, including multiples in the (extended) family, twins in the extended family, number of siblings and number of children.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Stressful life events during pregnancy

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_TRIP age 1-2
     
    0
    5
    10
    15
    20
    25
    30
    years
    Stressful life events or stressful periods during pregnancy were reported by participants.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Pubertal Development

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTION BB1_1 YC_ACTION BB1_2 YC_ACTION BB2 YC_ACTION - BB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YC_ADHMRI YE_COG18 YS_TRIP age 1-2
     
    0
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    10
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    25
    30
    years
    Pubertal Development was assessed through questions about breast growth, menstruation, shaving, deepening of the voice, and growth spurts.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Work demographics

    Study:Netherlands Twin Register
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_3 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YE_FITNSS YE_ATTEF2 YS_DT YE_COG12 YS_TRIP age 1-2 YS_TRIP age 3 YS_TRIP age 4 YS_TRIP age 5 YS_TRIP age 7 YS_TRIP age 10 YS_TRIP age 12
     
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    25
    30
    years
    Work demographics consists of questions about working, hours of working, maternity/paternity leave, and type of profession.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Medication use

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6

    The Next Generation  NEXT - T2 NEXT - T3 NEXT - T4 NEXT - T5
     
    0
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    20
    25
    30
    years
    Medication use assesses whether participants use medication and contraceptive pills, including their name, dosage and duration of use.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Internet Gaming Disorder Scale (IGD)

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T6 POP - T7

    Clinical cohort  CC - T6 CC - T7
     
    0
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    10
    15
    20
    25
    30
    years
    The Internet Gaming Disorder Scale (IGD) is a short, validated assessment of gaming behavior. It includes items on preoccupation with gaming, tolerance, withdrawal, persistence, escape, problems, deception, displacement, and conflicts caused by gaming.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health behaviours

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T3 CC - T4 CC - T5 CC - T6
     
    0
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    10
    15
    20
    25
    30
    years
    The assessment of lifestyle includes assessments of physical activity, sports, and diet.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Health services utilization

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6 CC - T7
     
    0
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    10
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    20
    25
    30
    years
    Health services utilization is a self-developed questionnaire that assesses the use of several physical and mental healthcare services in the past period, such as the general practitioner/doctor, social workers, home care, district nursing, physiotherapist, crisis services, psychiatrist, psychologist, self-help groups, etc.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Financial debts

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T5 CC - T6 CC - T7
     
    0
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    10
    15
    20
    25
    30
    years
    Financial debts includes questions about the existence and size of any financial debts.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Substance use

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6 CC - T7
     
    0
    5
    10
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    20
    25
    30
    years
    Substance use assesses the use and extent of use of nicotine (smoking), alcohol, cannabis, and other drugs.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Happiness and satisfaction

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T4 CC - T5 CC - T6
     
    0
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    20
    25
    30
    years
    Happiness and Satisfaction includes 3 self-developed questions about how happy the respondent is and how content they are with their life.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Positive and Negative Affect Scale (PANAS-SF)

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T5 POP - T6

    Clinical cohort  CC - T5 CC - T6
     
    0
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    10
    15
    20
    25
    30
    years
    The Positive and Negative Affect Scale (PANAS-SF) - short form is a validated assessment of positive and negative affect, in which participants indicate whether they have experienced ten positive and ten negatives types of affect in the past period, such as interest, upset, strong, guilty, enthusiastic, proud, nervous, active, or scared.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Eating Disorder Diagnostic Scale (EDDS)

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T5 CC - T6 CC - T7
     
    0
    5
    10
    15
    20
    25
    30
    years
    The Eating Disorder Diagnostic Scale (EDDS) is a validated assessment of eating disorders. It includes items about anorexia nervosa, bulimia nervosa, and binge-eating disorder.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Absenteeism

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6 CC - T7
     
    0
    5
    10
    15
    20
    25
    30
    years
    Absenteeism is an assessment of absence from school or work.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Generalized Anxiety Disorder Scale (GAD-7)

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T5 POP - T6

    Clinical cohort  CC - T5 CC - T6
     
    0
    5
    10
    15
    20
    25
    30
    years
    The Generalized Anxiety Disorder Scale (GAD-7) is a validated, 7-item screening tool to assess generalized anxiety disorder, in which participants indicate to what extent they experienced feeling anxious, worrying, trouble relaxing or sitting still, becoming irritable and feeling scared in the past two weeks.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Survey Work-Home Interaction Nijmegen (SWING)

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T7

    Clinical cohort  CC - T7
     
    0
    5
    10
    15
    20
    25
    30
    years
    The Survey Work-Home Interaction Nijmegen (SWING) is a validated assessment of work-life balance. It includes items that assess the positive and negative effects of work on the home life, and positive and negative effects of home life on work, for example not being able to enjoy the presence of a spouse due to worries about work, or being able to fulfil...
    Created October 17, 2024 • Updated October 20, 2024

  • measure Partner support

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T5 POP - T6

    Clinical cohort  CC - T5 CC - T6
     
    0
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    10
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    25
    30
    years
    Partner support is an assessment of experienced partner support in the participant's job or education, health, time spending and practical issues. The questionnaire also assessed the existence of inter-partner arguments.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Antisocial Behavior Questionnaire (ASBQ)

    Study:TRAILS
    Mode of collection: SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6
     
    0
    5
    10
    15
    20
    25
    30
    years
    The Antisocial Behavior Questionnaire (ASBQ) is a validated assessment of antisocial and delinquent behavior. It includes items on aggression, vandalism, theft, anti-normative behavior, and drug-related problems.
    Created October 17, 2024 • Updated October 20, 2024

  • measure Life events and difficulties

    Study:TRAILS
    Mode of collection: Interview
    Available measurements:
    Population cohort  POP - T1 POP - T2 POP - T3 POP - T4 POP - T5 POP - T6 POP - T7

    Clinical cohort  CC - T1 CC - T2 CC - T3 CC - T4 CC - T5 CC - T6 CC - T7
     
    0
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    10
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    20
    25
    30
    years
    Life events assesses a number of important events in the participant's life, such as hospital admissions, moves to other houses, divorce, family illness, death of a loved one, romantic relationships, friendships, victimization, delinquency, and long stay away from home below age twelve.
    Created October 17, 2024 • Updated October 20, 2024
You can also access this registry using the API (see API Docs).